Resources

We believe knowledge drives progress. Our Resources page offers the latest insights on gene therapy breakthroughs, regulatory updates, and industry developments in hearing loss treatment. Whether you’re investing in our work, researching the field, providing healthcare, or living with hearing loss yourself—we’ve gathered the information that matters to help you stay connected to what’s happening.

Resources - RescueHearing

Empowering individuals with knowledge and support for hearing loss

Understanding Hearing Loss

Hearing loss affects millions worldwide, with genetic causes accounting for a significant portion of cases, especially in children. Learn about the science behind hearing loss, including the role of the cochlea and genetic mutations.

NIDCD - Hearing Loss Overview

Comprehensive information on causes and types of hearing loss from the National Institute on Deafness and Other Communication Disorders.

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CDC - Hearing Loss in Children

Resources on early detection and intervention for pediatric hearing loss provided by the Centers for Disease Control and Prevention.

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Hereditary Hearing Loss Homepage

Database with up-to-date overview of genetic causes of hearing impairment, including research findings and genetic testing information.

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Genetic Testing for Hearing Loss

Genetic testing can identify the underlying causes of sensorineural hearing loss, enabling personalized treatment plans and family planning strategies.

GeneTests - Hereditary Hearing Loss Overview

Comprehensive resource providing information on available genetic tests for various forms of hereditary hearing loss.

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American College of Medical Genetics and Genomics

Professional organization offering guidelines for genetic testing, including protocols for hearing loss genetic testing.

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Genetic Testing Registry - NIH

Searchable database of genetic tests for hearing loss and other conditions, including information about test providers and methodologies.

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National Society of Genetic Counselors

Find genetic counselors specializing in hereditary hearing loss who can guide you through the genetic testing process.

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Support and Advocacy Organizations

Connect with organizations dedicated to supporting individuals with hearing loss and their families.

Hearing Loss Association of America (HLAA)

Offers education, advocacy, and support for people with hearing loss, including local chapters for in-person connection.

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Alexander Graham Bell Association

Resources for families and professionals focused on spoken language approaches for individuals who are deaf or hard of hearing.

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Hands & Voices

Parent-driven support organization providing unbiased information about communication options for families with children who are deaf or hard of hearing.

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National Association of the Deaf (NAD)

Advocacy and resources for the deaf community, including legal assistance, public policy efforts, and youth leadership programs.

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Financial Assistance for Hearing Aids and Services

Access to hearing aids and related services can be costly. Explore these programs for financial support.

HLAA Financial Assistance Programs

Comprehensive list of financial assistance programs for hearing aids and services compiled by the Hearing Loss Association of America.

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ASHA Financial Resources

Information about insurance coverage and financial resources for hearing healthcare from the American Speech-Language-Hearing Association.

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Travelers Protective Association Scholarship Trust

Financial aid for individuals who are deaf or hard of hearing for specialized education and assistive devices.

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Lifestyle & Accessibility

Resources to help those with hearing loss navigate daily life and access the tools they need for full participation.

National Deaf Center

Resources for accessibility, accommodations, and transitions to work or college for deaf and hard of hearing individuals.

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NAD Law and Advocacy Center

Provides information about legal rights, ADA accommodations, and workplace accessibility for individuals with hearing loss.

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Described and Captioned Media Program

Free-loan described and captioned educational media available to people with hearing loss.

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Closed Captioning Resources

Information and resources about captioning technology and services for improved accessibility in various environments.

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TDI (Telecommunications for the Deaf and Hard of Hearing)

Advocacy organization focused on equal access to telecommunications and media for people who are deaf and hard of hearing.

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Healthcare Provider Resources

Professional resources for healthcare providers working with patients who have hearing loss.

American Academy of Audiology

Professional resources for audiologists, including clinical practice guidelines, continuing education, and patient care resources.

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ASHA Practice Portal

American Speech-Language-Hearing Association's comprehensive resources for professionals working with hearing disorders.

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Genetic Hearing Loss - GeneReviews

Detailed, expert-authored clinical summaries about genetic causes of hearing loss for healthcare professionals.

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CDC Early Hearing Detection and Intervention

Resources for healthcare providers involved in newborn hearing screening and early intervention programs.

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Auditory Neuropathy Information for Professionals

Clinical guidelines for healthcare providers working with children diagnosed with auditory neuropathy spectrum disorder.

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