About the CEO/Founder
2010 (age 5) Xavy was diagnosed with Bilateral Sensorineural Nonsyndromic Hearing Loss (SNHI). He was fitted for hearing aids that would be required for the rest of his life.
2015 (age 10) Through the persistence and determination of his parents to find the cause (and potential cure) for Xavy’s hearing loss, genetic testing was discovered. Genetic testing is usually available to children born completely deaf but not to those children who are born with residual hearing (like Xavy). Xavy’s parents pushed and paid out of pocket for a blood sample to be sent to a lab that specialized in genetic testing for hearing loss. His parents did not know that between 30% to 50% of all hearing loss is caused by genetic defects and that there are over 100 genetic mutations known to cause hearing loss. The results of Xavy’s genetic test revealed a defect in the STRC gene. The STRC gene is responsible for building functional inner ear hair cells. Mutations in the STRC gene can cause misformed hair cells that can result in congenital hearing loss or deafness.
2021 to 2023 (High School) Xavy participated in the theater/drama program as both an actor and technical crew (sound, lighting, and set design), golf team, and competitive dance team. Xavy excels academically in engineering, physics, and math and has developed a strong passion for automotive racing and engineering.
In 2022, Xavy founded “Race to Hear” (RTH) a non-profit organization that provides automotive engineering demonstrations to teach children about how cars work. Xavy built a full-scale racing “go-cart” that is used for live demonstrations. RTH presents at summer camps, community events, and public libraries. Several local businesses, charitable foundations, and individuals have donated to the RTH foundation and their respective logos and names appear on the livery of the race cart. The donated funds are used to purchase hearing aids for underprivileged children and adults who cannot afford the cost (Xavy’s hearing aids cost $5000 per pair).
2023 is Xavy’s senior year in high school where he will graduate at the top of his class and attend Harvard University in 2024. The takeaway – don’t let hearing loss keep you from reaching your full potential.
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